Things to discuss with specialist

So as many of you will know I have my next appointment with the foot specialist on Monday and I have lots of things that I want to discuss with him. Last time that I went I was fairly happy with the way the orthotics were working but this has changed drastically since then and I am now unhappy with the way that things are so I have many things to discuss with him.

1. More lumps? or just complications - I have been getting more and more pain towards the toes on my left foot and I am wondering if I have a lump down there or I am sure I have heard some people mention cords in the foot. I must admit that I cannot feel anything but perhaps something that might suggest there is something came up in the MRI? Though I am not sure how big an area they covered. That the pain now is enough that I am often struggling to walk, using a walking stick from time to time and it can stop me from getting to sleep and has once or twice in the last few weeks woken me up, I was checking this morning and I am sure the lump is getting bigger again. It is also now starting to affect my work and that I have times where my foot goes numb along the base and what does he make of that?
2. My Right foot - This has been feeling increasingly painful in the arch and in a specific area and in this area I think I can feel a lump so I am wondering if I maybe getting it bilateral but I am not sure and perhaps I am just being paranoid.
3. Can I have a copy of my MRI pictures?
4. Pain relief, can I have some please?
5. What does he think is the best option for me now?

• Is it radiotherapy and is it in another country or this country?
• Is it Xiapex or some similar injection?
• A gel like Verapamil? - I have heard many more stories of this not working rather than working.
• Is it, in his opinion, surgery? (which I will avoid)

I will of course be trying to remember everything that went on and will hopefully be able to post back in details what the guy said and whether I found it helpful or pointless. If I see the same guy as I saw last time I am at least hopeful that he can advise me on what he genually feels is the best option as he will know about radiotherapy and the other options but if I get the guy I saw the first time I think I will probably be making a complaint to the NHS about the lack of knowledge that this guy has.

In order to go armed I will be taking my book, the Dupuytren's Disease and Related Hyperproliferative disorders book with me as I know it at least mentions radiation to treat Ledderhose and Xiapex to treat Dupuytren's.

Right foot!

I know I have probably said this several times before but I think I may also be getting the damn thing in my other foot. I am not sure still but there is definitely a small lump that is in an area that I have started to associate with regular pain. Don't get me wrong it is nothing like the other foot and hopefully it will not go that way as one of the things that is keeping me on my feet at the moment is that I can rest my left foot by standing on my right foot. Not sure what will happen if I also have this blasted thing in my right foot... For now though I am not going to worry about that as I may just have pulled the fascia when I woke up and the lump is just a coincidence or something like that. 

I think that one thing this disease does make you is paranoid. I have heard of people that have it bilaterally and in the literature it is stated that it being bilateral is not uncommon therefore once you have it in one foot you start thinking you have it in the other foot. Fingers crossed this is just in my mind....