Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Wednesday, 10 January 2018

Update on me and things

So overall I am good, I have a few interesting projects that I am working on and my foot is still healthy, check out the BDS to see how things are progressing with the charity. 

Slightly off topic for the rest of today but I wanted to mention another project that I have been working on that might cross over to the work I am doing on Dupuytren’s and Ledderhose. In my work I have been utilising various skills over the last decade now I have gained experience in the sciences, which is why this blog stared, and also in data analytics, database development and more recently python and machine learning. Stick with me here I am going somewhere.

You see I have started another blog on python and one of my projects with this is to do some analytics around the Dupuytren’s and Ledderhose area. There are some potentially interesting things I can do if we can get the data together that will enabled me to do it. I have had a look at the data from the 2015 survey and I am not sure that we asked the right questions in quite the right way for this kind of study.

For example the DupStudy is going to be collecting a lot of medical data and biological samples for patients and control groups, I would like to do a study (not dissimilar to the one presented at the 2015 Dupuytren’s Symposium) on whether there are any lifestyle factors that contribute a) to the onset of Dupuytren’s b) severity of Dupuytren’s and c) age of onset. Given the relatively small datasets I would be working with it would not likely yield amazing results, but you never know what could be found. By study I actually mean get the computer to do the work for me, I have been working with Neural Network and machine learning which means we might be able to spots trends and patterns in patients and therefore make predictions that would not be seen by human analysis. For now this is just a pipe dream and maybe one day it will happen.

I will need to have a discussion with some of my contacts and see if this is something we can get going.

For those that followed it the 2191 challenge is now complete, check out the link to the right to see how to got on, for January 2018 I am taking a break from running to make sure that my body heals from the niggles I developed towards the end of the year. 

Friday, 1 December 2017

6th Birthday!

I have followed my template from last year although posting this a weeks late! 

It is hard to remember a time when I didn't have this blog or a time before Ledderhose and my blog has now reached its 6th birthday. 2191 may not have gone to plan but I have completed a marathon this year.  

The blog is up to nearly 400,000 page views (up from 300,000 last year) and most of the time I spend on it now relates to helping with patient questions and involvement on the Facebook groups. Though this year life has been busy especially with 2191. 

Here are some of the posts that I have done around October / November time in the last 5 years. There is quite a clear change in my condition and life throughout this time and it will be interesting to see how things go in the future.