Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Saturday, 1 August 2015

A new running achievement

I don't want to post on here too much about my running but this does go to further show that my foot is still ok. 

Park run went really well. I set off right at the front and took at steady whilst everything settled down and let the 21 minute pacer go past me (I was aiming for the 22 minute pacer) but to my surprise I found myself keeping up with the 21 minute pacer. Well I was stuck about 10 meters behind the group with the pacer. Ideal place for me as (having not run in groups for the past 2 years) I am used to running by myself.

I pretty much forgot to look at my watch but knew I was well under 7 minutes and it turns out it was 6:53. I actually remember being a bit surprised as I knew that sub 21 was faster than this. Sure enough it felt like the pacer picked up the pace a bit and several runners that were near me were dropped as we did the next mile in around 6:30. 

I then felt that the pace slowed a little and as we went into the last 800m I kicked past the 21 minute pacer and tried to stick with a couple of others who were pushing for home. I personally think that I went off a little bit too early as my pace dropped and then I kicked again heading into the finished. I looked down and I was past 3.1 miles before 21 minutes ticked over but didn't cross the finish line until 21:10. 

Sure enough my official park run time is 21:10 but according to my watch I ran 3.16 miles and ran 5k in 20:49. A huge boost to my confidence and shows what you can do on a low carb diet. I actually felt quite good at the end and feel I can go faster given another month of training and the correct tapering. 

Overall I am very happy with that result. To think 3 years ago I couldn't walk without being in extreme pain because of my Ledderhose disease and a year ago I weighed nearly 19 stone and couldn't run sub-30 minutes for 5k. In fact I have only run park run under 30 minutes once before.

My next goal is to make it so that the first digit is a 1. A 19 minute something 5k will be a huge achievement and I am very happy that I can do that this year. 


Thursday, 23 July 2015

Raising money for Charity:

As most people reading this blog will know I am a trustee for the British Dupuytren’s Society and this is something I am very proud of and happy with, in fact we do run our own blog (although not so busy). We don’t have huge funds at the BDS but if you would like to donate you can here, the main point however was that I already have 2 runs planned for the next 8 months and I am not running either for the BDS. I am not running for the BDS as people are less likely to donate money if I keep running for the same charity and I would love to save running a marathon for the BDS.

So in October this year I (and my wife) am running a 10k for Pancreatic Cancer UK. This race is going to be very emotional but I am really looking forward to it. The reason for the charity choice is because my Nan died ofpancreatic cancer last year and I really feel that this cause is important and would love to raise some funds for them. I don’t expect anyone from the blog to donate to this cause but you can do so here, my Nan was very proud of my blog and a big supporter in the work we are doing. I know she would have been extremely happy with the presentation I gave in Groningen and the weight loss (that is to some extent inspired by wanting to run this race well rather than just to finish). Hopefully getting a good time in this race can show that not only can Ledderhose patients run after having been in significant pain but that they run well when they were pretty poor runners before the Ledderhose.

The next race on the list is a half marathon next year. It is quite a big step up to a half marathon but given how training has gone I am confident that it is going to go well as long as we don’t get any injuries. The half marathon will also be special as it will be the longest race distance I have ever done and will hopefully again prove how strong my foot is now. The half marathon we are going to run for Mind. Mind is a charity that works on the mental health side of things and this is important to me (When Ledderhose becomes life threatening) and my family for many reasons. For the purposes of this blog the main point is that many Ledderhose patients suffer with mental health issues, having a condition which is fairly rare, where nobody understands and where the pain can be relentless is not easy.

The above 2 charities are both very worthy and I am proud to be running for them. I am hoping one day soon to run a full marathon and raise funds for the BDS which will further expand the ways in which we can help patients and raise awareness etc. If you can relate to the above charities then please do feel free to donate but this is not a post about trying to get people to give money, more an update on me, what I am doing and in some ways how after radiotherapy and my foot is so much better than I can run and have other things in my life.