Welcome

Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Thursday, 17 March 2016

Facebook Groups and Old Interview

Looking back to when I was just starting out I was on about 3000 page views in March 2012 (now on more like 250,000) and I had just interview the British Dupuytren's Society.

http://ledderhose.blogspot.co.uk/2012/03/interview-with-british-dupuytrens.html

The other thing I wanted to mention was the activity on the Facebook groups. To my knowledge there are 4 Facebook groups for these conditions however the 3 below I am sort of active on.

1) Dupuytren's, Ledderhose and related conditions support group
https://www.facebook.com/groups/1462124944043779/

2) Dupuytren's Disease Support Group - In may I will be doing a 1 hour or so coffee talk on here (just answering questions)
https://www.facebook.com/groups/879351412113444/

3) DART
https://www.facebook.com/groups/1622748151282109/


Tuesday, 8 March 2016

Looking back to 2012

Today I am going to continue to look back 4 years ago. I am actually finding it really interesting to see what I was doing 4 years ago and how that compares to where I am now and it is also good to remind me of why I started the blog and why I keep it going. 

The first post is one where I looked at things that were helping me with the pain back then. 


It is interesting how I mentioned in that post about people going out and doing runs and ironically now I am probably a much better runner than all but one of them (but he was really good). but when I am looking at the things that helped I still find that keeping my feet warm is preferable to letting them get cold. I still wear thermal socks and have only just stopped using the orthotics. I still recommend that most patients will benefit from keeping their feet warmer and if you can get orthotics they are worth a try. 

I also mentioned in that post how I had just started using a walking stick, thankfully I only resorted to that for a year but mentally using a walking stick as a 25 year old was very tough but made all the easier by "Wonderful Wife and supportive family: There is nothing like having people that will put up with you moaning about it and give helpful suggestions and great advice. Thanks everyone "

Another post I did around then was actually on how bad the pain was at times. 


For me that was just an interesting post to reread and see where I was physically and mentally 4 years ago.