Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Sunday, 30 August 2015

Being careful

Although I am now in a really good place with my Ledderhose I still have to be careful. For those that aren't sure I am not "cured" for lack of a better word the condition is in remission. The pain has gone and I no longer need a walking stick, I am running and for the most part I don't think of the condition any more. 

There are however a couple of exceptions to this and they are more of an annoyance although also a constant reminder and something that makes me remember how important it is to help patients that are in the position I was a couple of years ago. 

1) Hitting the arch: The lump, although significantly smaller, is still there and direct impact on it can be painful. For example I was walking down the stairs the other day and I stepped over the baby gate and slightly misjudged my step and this resulted in me bashing my arch on the bottom step. This bashing was incredibly painful and significantly more that had I done the same thing on the other foot. Of course I could wear trainers all the time but with the little one running around I would rather not risk treading on her toes. 

2) The orthotics: Buying new shoes is a real pain I have wide feet and the orthotics are obviously wide to cater for that but also they add depth so I have to get shoes that have the height to fit my feet (which are also fairly tall, think brick shape) and the orthotics. 

3) I am still wearing the orthotics. Not sure if I could get away without them and is something I am considering trying as I have so little pain at the moment. The aim of the orthotics now is to try and get me to walk normally rather than on the outside of my foot as my body learnt to do that whilst the foot was bad. 

Don't get me wrong I am not complaining however there are still things that need to be catered for.   

Saturday, 1 August 2015

A new running achievement

I don't want to post on here too much about my running but this does go to further show that my foot is still ok. 

Park run went really well. I set off right at the front and took at steady whilst everything settled down and let the 21 minute pacer go past me (I was aiming for the 22 minute pacer) but to my surprise I found myself keeping up with the 21 minute pacer. Well I was stuck about 10 meters behind the group with the pacer. Ideal place for me as (having not run in groups for the past 2 years) I am used to running by myself.

I pretty much forgot to look at my watch but knew I was well under 7 minutes and it turns out it was 6:53. I actually remember being a bit surprised as I knew that sub 21 was faster than this. Sure enough it felt like the pacer picked up the pace a bit and several runners that were near me were dropped as we did the next mile in around 6:30. 

I then felt that the pace slowed a little and as we went into the last 800m I kicked past the 21 minute pacer and tried to stick with a couple of others who were pushing for home. I personally think that I went off a little bit too early as my pace dropped and then I kicked again heading into the finished. I looked down and I was past 3.1 miles before 21 minutes ticked over but didn't cross the finish line until 21:10. 

Sure enough my official park run time is 21:10 but according to my watch I ran 3.16 miles and ran 5k in 20:49. A huge boost to my confidence and shows what you can do on a low carb diet. I actually felt quite good at the end and feel I can go faster given another month of training and the correct tapering. 

Overall I am very happy with that result. To think 3 years ago I couldn't walk without being in extreme pain because of my Ledderhose disease and a year ago I weighed nearly 19 stone and couldn't run sub-30 minutes for 5k. In fact I have only run park run under 30 minutes once before.

My next goal is to make it so that the first digit is a 1. A 19 minute something 5k will be a huge achievement and I am very happy that I can do that this year.