Welcome

Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Saturday, 21 May 2016

4 years since radiotherapy and 2191

I probably do this every year (so I will not go into real detail), the 21st May will be 4 years since I started radiotherapy for Ledderhose. My treatment was at the Royal Surrey County Hospital with Dr Shaffer, more details can be found here:


Looking back now it was quite a journey, thing were tough at the time. I knew that I was going to have to give up my PhD, something I had worked hard for, about 7 years including my undergraduate I was newly married and felt I was letting my wife down as she was going to have to work extra hour to make up the slack. My foot was giving me so much pain that I was using a walking stick, I couldn't go anywhere without thinking of where we would park or how much time we would have to spend on our feet. 

The start of radiotherapy was a turning point for me. Sure it was not instant and in fact it angered the condition to start with but when the improvements started they were dramatic. In the 6 months after I finished radiotherapy I went from using the walking stick and constant pain to being able to walk and run more or less pain free. Last year I started running properly and turns out I am not too bad at it. 

Today I am also announcing the start of my 2191 challenge, something I am embarking on with my wife to raise money for the British Dupuytren's Society. It is still a work in progress but more information can be found here: 


Please help, even if you cannot donate you can help raise awareness of the conditions by tweeting or sharing the page on Facebook. I would love to get some media awareness to bring a larger audience to the condition. After all we have gone from a lump in the foot and walking stick to running a marathon and thousands of miles. 

Thursday, 17 March 2016

Facebook Groups and Old Interview

Looking back to when I was just starting out I was on about 3000 page views in March 2012 (now on more like 250,000) and I had just interview the British Dupuytren's Society.

http://ledderhose.blogspot.co.uk/2012/03/interview-with-british-dupuytrens.html

The other thing I wanted to mention was the activity on the Facebook groups. To my knowledge there are 4 Facebook groups for these conditions however the 3 below I am sort of active on.

1) Dupuytren's, Ledderhose and related conditions support group
https://www.facebook.com/groups/1462124944043779/

2) Dupuytren's Disease Support Group - In may I will be doing a 1 hour or so coffee talk on here (just answering questions)
https://www.facebook.com/groups/879351412113444/

3) DART
https://www.facebook.com/groups/1622748151282109/