Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Monday, 8 February 2016

Interesting new Facebook Group

The Ledderhose Disease Blog and the BDS are pleased to announce that a great new support group has formed in the US, headed up by Leslie Wieslander Rosenthal and Brenda Andrews Fortner.  It’s called the Dupuytrens Disease Support Group.  We are delighted to form a collaboration with them in their new venture.

The group was formed to offer support to all sufferers of the disease and to offer discussions covering all treatment options.  Leslie and Brenda have been working very hard to advocate on behalf of our
global community.  One of their latest initiatives is inviting doctors who are tops in their fields to host what they call Coffee Talks.  They are fortunate to have 7 forum expert physicians join them, including Drs Eaton and Pess of the Dupuytren Foundation, Dr. Richard Schaffer a UK Radiation Oncologist, and three other US based Radiation Oncologists, Drs. Gopal Bajaj, Dr. Lawrence Hochman and Dr. Guy Jones.  Additionally, Dr. Keith Denkler, a plastic surgeon with dual specialty in hand surgery is a member.  

Coffee talks have been scheduled with many of these doctors.  They are typically one hour long and allow members to ask questions in a live forum Q&A.  Mark your calendar for Dr. Richard Shaffer’s Coffee Talk which is scheduled for February 25 at 5PM UK time.  

Dates and times for additional Coffee Talks will be announced.  To participate you must be a member of the Dupuytrens Disease Support Group.  We are delighted to form a collaboration with this energetic new group! https://www.facebook.com/groups/879351412113444/

Saturday, 19 December 2015

A year of change and no pain

I have commented a lot how this year has been pretty much pain free for me apart from the odd direct bash on the arch of my foot. This year has been massively exciting for me as I have lost a lot of weight, become a decent runner, lost more weight, ditched the orthotics, lost more weight and more. 

I have not had as much time to do Ledderhose related activities as I would like but there also hasn't been as much to do. Of course I went to Groningen and we have announced the BDS FREE membership (please sign up and support use, we promise to not annoy you...)  but other things in my life have taken over. I am now running a lot and getting pretty quick (even for someone who hasn't had a lump in their foot and weighed 19 stone). My main aim remains to run the Brighton Marathon in 2017 and hopefully I can do this to raise money and awareness for the BDS and getting more knowledge out there about Ledderhose. 

The year has certainly been dominated by weight loss. Never thought I would lose as much weight in a year as I have nor ever run as fast as I have, I was aiming for sub 30 not sub 20! A low-carbohydrate high fat lifestyle is frowned upon by many but if you do the research then it is actually easy to do, easy to stick to and for us at least it worked.  

I hope that everyone else has a fantastic 2016 and that everyone with this condition can find relief. If you feel there is something you can contribute towards the blog then please get in touch. My goals for 2016 will be to keep on running, keep on low-carb and spend lots of quality time with my family. Hopefully there will be some interesting things come up for the blog and the BDS. Have a great Christmas and New Year.