Welcome

Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Wednesday, 12 November 2014

UK blog Awards

The UK blog awards have now officially opened (after technical issues that delayed it going live). 

I am delighted to say that you are now all able to vote on the following link. I am not expecting to win as I am up against full-time bloggers and companies but the least I can do it try and hopefully help raise a bit of awareness in the process. If we can't get through to the next stage this year then hopefully by next year we will have an even larger community to help out.


Feel free to share the link with your friends, family and colleagues, well anyone that you think my vote and perhaps in the process if nothing else you may help to raise awareness. 

I am myself sharing this with several different companies who will hopefully help out, after all it could help everyone if the condition and alternative treatments have increased exposure. 

Thank you everyone for your time, help, support and hopefully votes. 


Friday, 7 November 2014

Patient Series - Patient 9 Introduction

Initial Background Questions:

Please state your age, gender, country of origin and where you live (if different to origin) and how long you have had the condition? 

Aged 57, female, England, Scotland, 4 years

Do you have it in both feet or any hands? 

Both feet

Please detail any family history or common risk factors which apply to you:

No family history or common factors that I am aware of

Please list any treatments you have had, the time since you had them, the progress (or lack of) after treatment and any side effects

RT, August and October 2013

No side effects, little improvement over first three months, then aware that nodules had stopped growing, now feel that they are softer and cause less pain.

Please detail any other information from your past which you think may be relevant and not covered in the monthly questions: 

N/A

Monthly Questions:

In the last month have you noticed any changes in the pain or size of the nodules? Or have any new nodules have developed?

No

Please list a) The maximum pain b) the average pain c) the minimum pain you experienced this month and anything that improved or worsened the pain. 

One or two twinges a week, very little pain

In the last month what medication or treatments have you had, please describe in as much detail as possible including whether prescribed or home treatment, if applicable where the treatment was administered, by whom, cost (if happy to share) and how this has impacted the condition

Visited podiatrist to request a second pair of insoles. They came back a few days later, the arches are slightly higher than the last pair, but I am sure I will get used to them. 

Please describe how the condition has impacted you on a daily basis in the last month and any new steps (not treatments) that you have taken to try and alleviate this impact. 

The combination of recent improvements (as a result of RT?) and orthotics means the condition has little impact on me. Presently on holiday in the Cairngorms, walking 5 - 8 miles a day. 

Friends 60th birthday party - it does make finding dressy/party shoes difficult. Tend to go straight from sandals into boots.

Please describe the level of exercise that you have been able to achieve this month and any specific diets you have used if you think they have impacted the condition.

See above. Been veggie for about 20 years.

Please list any other information that you think would be useful

N/A