Welcome

Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Thursday, 21 May 2020

8 years post radiotherapy

I had a little notification pop up on my phone today, "Start of Radiotherapy Birthday"

Made me think that it is now 8 years since I start my radiotherapy journey. Hard to imagine a life where I couldn't walk, now I run, play with my daughter and am 60% of the weight I was at the time. I still get patients asking if radiotherapy was the right thing to do, especially at such a young age. Obviously given the result I have had it was the right choice and I am delighted with the outcome. 

So are some posts I did on: 




Anyways this was just a little update to say that I am still here, I am still running and my foot is feeling great. 

Tuesday, 11 February 2020

Ledderhose Webinar

I was recently involved in a Ledderhose webinar, this has been shared on YouTube and you can watch it below.