Participants were asked to rank from 1 to 10 (10 being most painful) their condition from year 0 (diagnosis) up until now or year 30 (only 1 participant had had the condition for 30 years). Below I have 2 tables showing some of the results.
|-8||1||*Year after RT treatment, no later pain increase|
|-6||1||*Year after RT treatment, no later pain increase|
|-5||3||*all 3 after surgery and again increased|
|1||55||*High number of 0/1/ 2 suggest that progression is normally slow|
|6||3||*But over 1/2 of respondents experience a sharp increase|
|Avg Max pain|
|2.28||Max yr on yr diff 2|
|7.22||> 3 year on year diff|
The above information and the rest of the results are summarised below.
- The size of the nodule is not proportional to the amount of pain
- Age of onset does not impact on progression
- Male or Female does not impact on progression
- Generally when gets bad seems to progress quickly
- It appears that without a large increase in pain you are not like to be experiencing too much pain
- Significant decreases have been observed post treatment with radiotherapy and surgery, after surgery pain rose again.
Below are some examples of patients pain levels over time.