Showing posts with label leddehose. Show all posts
Showing posts with label leddehose. Show all posts

Thursday, 5 August 2021

Virtual Dupuytren's Symposium - 2021

The registration and program have been released for the next Dupuytren's Symposium and there are some interesting sessions that I am looking forward to attending. 

You can see the whole program here.

Highlights for me will be the session on radiotherapy because 1) It worked so well on me and 2) 2 of the papers being discussed are on the treatment of Ledderhose:

Session 4: Wednesday 3rd November, Time: 20:00 UTC (20:00 GMT)
Radiotherapy

Keynote: Radiotherapy for Dupuytren Disease
Dr. Richard Shaffer, The Dupuytren’s Practise, London, UK

1. A Randomized trial of Radiotherapy for Dupuytren’s Disease – DEPART
J. Martin, Newcastle, Australia
2. Radiotherapy in patients with painful Ledderhose disease: a randomised, multicenter, prospective, double-blind phase III trial.
A. de Haan, Groningen, The Netherlands
3. Radiotherapy for patients with Ledderhose disease: long-term efficacy, side effects and patient-rated outcome
A. de Haan, Groningen, The Netherlands

After this I am also looking forward to session 6 which is experimental treatments. Looking forward to getting an update on the anti-TNF treatment. 

It is a shame that the conference is having to be held virtually as last time it was such a great experience meeting up with everyone and learning a lot from all the different people at a single conference. 



Monday, 5 June 2017

Popular posts and pageviews

Was looking at a few of the stats from the blog the other day and it has now passed 350,000 page views which is pretty cool and I was interested to see where the majority of those page views have come from, in terms of which pages were getting viewed as this is a great indicator of what people are interested in. 

The most popular post by far is my original post that I have expanded over the years. It is just a share of my experience, this is why I love to add interviews when I can. This post also has a lot of interaction with over 100 comments which is great. 

Another great source of information is the doctors interview with Dr Spilken. The clinic is still running although now being run by someone her mentored. I am not sure why this interview is so popular but it is probably because there is very limited information on the net about cryotherapy / cryosurgery. Indeed it is one of the treatment options that I wish there was more information about, much like the injections that Dr Davis does, the treatment sounds great but I struggle to find significant scientific publications or patient experiences to back it up. I have had another look and put put another request for patient interviews but I am still unable to get more information out there on cryosurgery or the injections, if you have been treated by either of these or have any information then please do get in touch. 

In terms of posts on treatment options it is actually the page on orthotics that gets the most views. I don't have that much information on orthotics so I will be putting a few feelers out there to see if I can get any more information and details on how they can be of use in both relieving pain and correcting gait for Ledderhose patients. 

In completely random news we have also recently had another addition to our family which has been great fun, see below!