Monday, 1 July 2013

Radiotherapy for Ledderhose and Dupuytren's in Ireland

In order to try and expand the blog a little bit I am trying to get in contact with specialists that treat Ledderhose throughout the world. At the moment I am in contact with a lit of patients in places like the USA and it would be nice to have had contact with some specialists over there and I have also seen that there are now some places offering cryosurgery in the UK for Ledderhose. 

Unfortunately it seems that most of the people I have been in contact with either seem to think that what I have sent them is spam or not worthwhile responding to. 

One person who has replied though is Frank Sullivan in Ireland. He does radiotherapy for both Dupuytren's and Ledderhose. I have not asked him for a proper interview as he has only treated a few patients in the last couple of years. 

This struck me as a bit odd, Dr Shaffer treats 2-3 patients a week and yet there are several Dr in England that do RT for DD / LD but on the IDS website Dr Sullivan is the only Dr to do radiotherapy for these conditions in Ireland. If anyone in Ireland would like to get in touch with Dr Sullivan he is happy for me to pass his details on. 

I asked him why he thought this might be and here is the response that I got: 

"Poor awareness of the benefits of XRT amongst both Irish radiation oncologists and plastic surgeons I'd say…especially the latter. I imagine the condition would be as common in Ireland as the UK. I have had some good results (as best as I can tell with short follow up). I use the Nice Guidelines, and the German protocol"