Update 27-08-2012 - I have now had radiotherapy and so far so good.
I think that the next step for me is radiotherapy, it has had good results and I want to avoid surgery as many people have become much worse post surgery and as far as I can tell radiotherapy is at the very least a good pre-surgery measure and is worth trying if you can get it. At the moment I am most likely going to get this done in the UK because I do not have much money and this seems to be the cheaper option although the main guy in Germany probably does have more experience.
Update 27-08-2012 - My family and friends worked together to raise the money for me to get radiotherapy. My condition is improving and hopefully I will be back to normal by the start of next year.
5) What other options have you come across?
Finally a picture of my ledderhose. It doesn't look like much and I have seen worse.