A few crazy things:
Right so I noticed that my blog is now linked to on here: http://dupuytrens-society.org.uk/TreatmentL.html
Which is great and crazy at the same time, at least it means that my story should reach a few more people and maybe the forum as a place to talk for a few more people. So I thought I would investigate and see what else I could find and found that Google searches for the following words result in the blog coming up in the rank shown:
I also saw that someone had linked to the blog through a search with Ledderhose and weight as their search and the blog comes up 9th with this.
Ledderhose blog - 7th
Plantar Fibroma Blog - Forum is 6th and blog 9th
How to cope with Ledderhose or how to cope with plantar fibroma - 1st (wow)
Ledderhose & running trainers - 7th
Plantar Fibroma Support - Forum - 7th (disappointingly Ledderhose support does not yield the same result)
Christmas and Ledderhose - 3rd
Cali and Ledderhose - 10th (thank you Cali)
Plantar Fibroma Forum - 2nd & 3rd - interestingly the forum does not come up but the blog does in 8th place.
Plantar Fibroma Video - 4th place - another one that has actually been used to find the blog.
Another very likely search to be done is Plantar Fibroma Sportsman where the blog comes 2nd and 3rd.
Plantar Fibromatosis physio -2nd Interestingly this brings up the review I wrote on Dooyoo which is the same as one of my first posts on here. http://ledderhose.blogspot.com/2011/11/plantar-fibroma-real-pain-in-foot.html. This also comes 3rd if you search for plantar fibroma uk specialist
So as you can see there is a huge chance for people that need help with this disease to come across this blog, come across the forum and hopefully be able to find someone else with the disease even if we can't make the pain go away.
http://plantarfibroma.freeforums.org/index.php
On my travels I also came across this
http://www.pfizer.co.uk/sites/uk/media/pressreleases/Pages/200PeformersCreateGiantHumanHandtoShowImpactofDUPUYTREN%E2%80%99SDISEASE.aspx
I know it is for the hand version (for lack of a better phrase) of the disease but it is good to see someone with a bit of backing trying to raise awareness.
Showing posts with label Christmas. Show all posts
Showing posts with label Christmas. Show all posts
Tuesday, 17 January 2012
Monday, 16 January 2012
I'm back
Right I am back after the Christmas break and have been suffering with some nasty virus that has kept me out of action for a while but I want to get back to posting.
First of all I have been and had my MRI, they are looking not just at my bad left foot but also at my dodgy right ankle. The process was as anyone who has had one knows painless and not too bad. I went into a room with a giant noisy machine and they basically wedged my feet so they wouldn't move and then slid me in. Each foot took about 20 minutes and the machine was one loud beast but overall if it hadn't been for my cough I think it would have been very smooth. I have a date later this month to discuss my results with the specialist and see what happens.
I have also been and had my orthotics fitted. See pictures below:
The black ones are the orthotics and the red ones are the old standard insoles. They have Achilles support at the back, arch support that doesn't put pressure on the lump in the middle and a toes bar at the end. They are supposed to stop both pain through the lump, me tilting my foot to the sit which meant that all weight was going through my little toes and also help with my poor old Achilles.
I think due to the Christmas break and being ill I have not been in much pain at all anyway and have just been suffering the odd spike as I have been stuck in bed almost all day every day for 3 weeks. I think that is almost over now, I am at least out of bed for a few hours before I need to crash and my head is certainly much much clearer.
I have also had some people finally join the forum I made, whether this will come to anything I do not know but one person has even made a post about their experience with plantar fibromas.
Looking forwards it is only 4 weeks until my wedding day so I have that long to a break and with these orthotics in to make sure my shoes are nice and comfy on the day.
Stay tuned for my progress with the orthotics that I have to wear in for 30-60 minutes at a time and bring that to a whole day over the course of 3 weeks and for my MRI results to see whether what I have is a plantar fibroma or just something with very similar symptoms.
Sunday, 4 December 2011
Something different
I hate talking about the same old thing over and over again so I thought it would be nice to touch on something different, so I am going to have a quick mention about Christmas, after all we did get our Christmas tree up on Friday.
I was very interested to see how the cat would act around the tree, I fully expected her to climb it and I waited and I waited and then this morning finally it happened. Sure she got told off straight away but she managed to get quite high. Now we just have the problem of keeping her off of the tree.....
Anyway not long to go now and I am really looking forward to spending time with the families.
I was very interested to see how the cat would act around the tree, I fully expected her to climb it and I waited and I waited and then this morning finally it happened. Sure she got told off straight away but she managed to get quite high. Now we just have the problem of keeping her off of the tree.....
Anyway not long to go now and I am really looking forward to spending time with the families.
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