Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Tuesday, 16 February 2021

500,000 page views (almost)

I have had some interesting discussions in the last few days around Ledderhose, it has been a long time since that has been the case and it was interesting delving back into some Ledderhose based stuff. These conversations led me to looking at the blog and realising that I am fast approaching half a million page views. 

On the one hand that is not a huge number of page views in the grand scheme of things but at the same time I have not posted frequently in a long time and the blog is about a rare condition so the potentially viewer pool is pretty small. 

This year, in November, will also mark 10 years since I launched the blog. I have come a long way and posted about a lot of things in that time frame. The most popular post is still the original post of my story, I have expanded this as I have gone and it does track my progress pretty well. 

On one of my chats I mentioned attending the Symposium and could not believe that was 6 years ago, fingers crossed the next one manages to take place. Attending and presenting at the symposium was a fantastic experience, I learnt a lot and feel that the BDS / IDS showed that patient advocacy can be useful. 

Other highlights include all the patients and professionals I have interviewed and of course on a personal note in that time I have gotten married and had a child. 

So thank you to everyone who has viewed or contributed to the site since I started it, maybe in another 10 years I will be hitting 1 million views!!! 

Thursday, 21 May 2020

8 years post radiotherapy

I had a little notification pop up on my phone today, "Start of Radiotherapy Birthday"

Made me think that it is now 8 years since I start my radiotherapy journey. Hard to imagine a life where I couldn't walk, now I run, play with my daughter and am 60% of the weight I was at the time. I still get patients asking if radiotherapy was the right thing to do, especially at such a young age. Obviously given the result I have had it was the right choice and I am delighted with the outcome. 

So are some posts I did on: 

Anyways this was just a little update to say that I am still here, I am still running and my foot is feeling great.