tag:blogger.com,1999:blog-660534336558900776.post4336955112788003921..comments2023-09-24T20:54:29.223+01:00Comments on Ledderhose Disease Blog: Plantar Fibroma - a real pain in the footGaryManleyhttp://www.blogger.com/profile/03039676015910922554noreply@blogger.comBlogger39125tag:blogger.com,1999:blog-660534336558900776.post-47599331102468922262023-06-12T09:08:08.911+01:002023-06-12T09:08:08.911+01:00Thank you for providing very helpful information f...Thank you for providing very helpful information for your post and it is which is truly informative for us and we will surely keep visiting this website<br /><br />Regards,<br /><a href="https://kentmskclinic.co.uk/conditions/retrocalcaneal-bursitis/" rel="nofollow">Ultrasound steroid injection</a><br />zmarionorrishttps://www.blogger.com/profile/15097005488203108189noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-73827153724497478682021-05-10T20:13:51.232+01:002021-05-10T20:13:51.232+01:00Hello,
So happy to have found this blog. Was very ...Hello,<br />So happy to have found this blog. Was very surprised to see in Gary’s presentation on YouTube link that frozen shoulder could be related to Ledderhose disease. I am recovering from frozen shoulder surgery that I had in Aug 2020 which relieved about 85% of the stuck rotation and pain. Still in physical therapy 1xweek to get back to 100%. As far as Ledderhose disease, I currently have 9 nodules on the arches of my feet. 5 on right foot, the biggest being the size of a nickel. 4 of various smaller sizes on left foot. 7 years ago I had only 2 on my right foot and they were the size of peas. Miraculously they only are painful when I press directly on them and don’t cause any discomfort otherwise. My concern is that they are bilaterally “breeding” and doesn’t seem to stop. Very concerned that one day they will be big or numerous enough to start causing the pain that everyone above has written about. My own research has concurred with Gary that surgery is not an option. I found on a website called Ledderhosedisease.com that patients and doctors are finding success using an injection mixed of a combination of enzymes (hyaluronidase), local anesthesia ( lidocaine or Marcaine) plus a small amount of a repository steroid (triamcinonlone acetonide) and inject the solution into nodules to gradually shrink and soften them. Injections are augmented by a diagnostic ultrasound. Haven’t tried this but when and if the time comes that I can no longer be physically active or am hindered by the pain, I will probably try this. Has anyone done this and if so what are your results? I might also mention that the doctors on this website think that surgical approaches or use of radiation on a benign lesion is too aggressive. <br />As far as genetically inherited , I have a 1st cousin who also had frozen shoulder surgery the exact month I did. I am curious to ask her if she also has Ledderhose disease. Thanks for letting me share and the research you have done,Gary. Leilanihttps://www.blogger.com/profile/16926475548744164409noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-9511861929694771532021-04-01T11:32:14.340+01:002021-04-01T11:32:14.340+01:00Hi. This post and the comments have been quite ama...Hi. This post and the comments have been quite amazing and exceedingly helpful to read through. Thank you for keeping this post up and for keeping the comments open. I'm just starting my pursuit of treatment options and appreciate all of these testimonialsOwenhttps://www.blogger.com/profile/13877508604261869770noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-15848352212300688012021-02-16T17:51:58.408+00:002021-02-16T17:51:58.408+00:00Hi, sorry for the slow response getting back to yo...Hi, sorry for the slow response getting back to you. As per the pictures and post above I only had the 1 lump, I hope you have been able to see someone who can help. GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-36420495560864554522021-02-16T17:49:37.928+00:002021-02-16T17:49:37.928+00:00Sorry to hear your experience, fingers crossed you...Sorry to hear your experience, fingers crossed you can find the pain relief you are looking for. GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-66747237103880767002020-11-24T04:57:03.704+00:002020-11-24T04:57:03.704+00:00I had pain this summer that ended up being fibroma...I had pain this summer that ended up being fibroma one on each arch.Iam going to try verapamilAnonymoushttps://www.blogger.com/profile/13048014048484109038noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-64954089723337392472020-08-23T04:45:58.824+01:002020-08-23T04:45:58.824+01:00It has been helpful to read all your posts. I was ...It has been helpful to read all your posts. I was diagnosed with Ledderhose Disease 15 years ago. Here is my story. I have had 3 surgery's as my lumps grew aggressively. The first surgery was on my right foot which provided relief for 5 years. Then I noticed 2 lumps in my left foot so I went to see my doctor. He confirmed the 2 in my left foot as well as 3 more in my right foot. Soon the altering of my gait (walking pattern) to alleviate the pain, my hips began hurting as I was throwing my body out of alignment. My doctor sent me to a foot specialist. It was decided the best course of action was another surgery on my right foot. <br />The second surgery was more complicated as they opted to remove my entire plantar facia rather than incising the lumps from the facia. After the surgery I was no-weight bearing for 4 months and required to wear a boot for an additional 2 months. As my foot was recovering I noticed I couldn't feel half of my foot when touched but when the slightest pressure was applied to the "dead" area, I experienced excruciating pain. In expressing my concern, the surgeon disregarded me. Eventually I asked for a second opinion and was referred to another doctor. It was opinion of this other doctor that I have irreparable nerve damage in the foot. The pain from this damage is constant and although the facia was removed, the surgeon did not get all the facia tissue and I now have a lump growing on the side of my foot on the incision scar. Insert eye roll. <br />Now to my left foot. As I was recovering from my second surgery , my left foot lumps were growing aggressively. I opted for incising the lumps out rather than a full facia-otomy. Maybe to get a couple years of relief before the buggers grow back. One of the lumps was slightly bigger than a ping pong ball. I'm 6 months from the surgery and I have yet to feel relief. <br />My hope is to one day be pain free, however I am not optimistic. Thanks for letting me share. Anonymoushttps://www.blogger.com/profile/18325026363416252893noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-36657567923487271792020-08-11T03:32:25.936+01:002020-08-11T03:32:25.936+01:00Hi I have developed 4 on right arch the size of ca...Hi I have developed 4 on right arch the size of canadian dollar with a fifth now developing with in the cluster but feels more hard! I have 2 mild ones developing in my other foot! Due to covid i am a sitting duck as i await to see specialist! my question to you is how many lumps did you have? I am planning to go on disability due to the fact i lived with this fro 2 years and i cannot stand on my feet for longer than 20 minutes than i am in severe pain and uncomfortableness! Most horrible yet dealing with this!Anonymoushttps://www.blogger.com/profile/14876123410998412670noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-22211438081565798212020-07-05T16:09:01.494+01:002020-07-05T16:09:01.494+01:00I just discovered what I believed is a fibroma on ...I just discovered what I believed is a fibroma on the bottom of my foot and it is really bothering me. It is quite large, nickel size on middle of foot. If it was there before it was smaller and not bothersome. Has anyone been successful with seeking radiation therapy early on in diagnosis. I really want to get rid of this thing quickly. Going to make appointment with doctor soon. I’m assuming going to podiatrist is the best option? Appreciate feedback. Anonymoushttps://www.blogger.com/profile/14120917327011585550noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-87791561379411198052019-02-18T13:49:46.700+00:002019-02-18T13:49:46.700+00:00Hi I have had a lump taken out of my right foot, i...Hi I have had a lump taken out of my right foot, it did come back and I had to have light therapy (didnt do anything) and eventually steroid injections which hurt like hell but did the trick. I now have 3 lumps in my left foot, I went to be a specialist and they were confirmed as<br />Ledderhose. He said he didnt advise surgery at all as there were so many complications. As it is I cannot wear shoes with an instep as the scar on my right foot sits on the top of the instep.<br />He suggested leaving the lumps in my left foot as they were not too prominant at the time, but in the last month or so they are getting bigger and sore throughtout the day, even though I have a desk job so it is not as if I am on my feet all day. Any suggestions for pain relieve would be gratefully received Alsibhttps://www.blogger.com/profile/11119284881358321119noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-72724923007213147782013-04-17T14:11:03.941+01:002013-04-17T14:11:03.941+01:00Best of luck Sharon,
I have heard of people gett...Best of luck Sharon, <br /><br />I have heard of people getting radiotherapy in Australia but worth checking their protocol (if you went that route) as I do know of one Australian not having a good time of it after RT in a way I have not heard from anyone in Europe. <br /><br />Please keep my updated and any questions then feel free to comment here, on the forum or drop me an e-mail (shown at the top on the right). <br /><br />Cheers, <br /><br />GaryGaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-12724825216511236312013-04-17T13:15:18.093+01:002013-04-17T13:15:18.093+01:00I had my ultrasound today to check on a blood clot...I had my ultrasound today to check on a blood clot and was concerned that a lump that suddenly appeared virtually overnight was the clot moving. Good news, it wasn't..... bad news, the clot was still there........ and the initially reassuring news,the new lump was plantar fibromatosis. The chap who did the ultrasound suggested I go home and research it when I told him he'd confirmed what my doctor thought and she said it would be simple to just cut it out!!!!!!!! I am going to buy that guy a gift for suggesting I do some research! Can't wait to hear what my doctor suggests at tomorrow's appointment. I am a 52 year old Australian woman and work as a barmaid so it doesn't sound promising. And I was worried about a clot!!!!!!!! Hopefully they can just strip that vein as its not a very healthy one anyway. Sounds like this other lump might be a fair bit more problematic. So far it's just a pea size lump in my right arch that hurts after it's been pushed on. Will pass on any alternative suggestions that the Australian medical experts come up with. My son lives in the UK and sent me the link about fm. Anonymoushttps://www.blogger.com/profile/12682182052359223364noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-82499414293572786042013-04-15T13:58:21.253+01:002013-04-15T13:58:21.253+01:00It would probably be better if you e-mail me.
Th...It would probably be better if you e-mail me. <br /><br />The NHS is rubbish for this condition, I had to go private, I did and I got radiotherapy and now I am playing badminton and have started jogging, my foot improved within months and although this is not the case for everyone I have heard from many patients who have been aided greatly by RT. <br /><br />You do have to get it done privately and will probably have to travel to the London area. <br /><br />You can try 1) Getting steroid shots, 2) Orthotics (I saw you posted on that, they did help me but only for a couple of months) and um well there isn't a huge amount else. <br /><br />Would be best to continue this by e-mail. <br /><br />Please get in touch again, hopefully we can find something to help. GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-32244539130357773042013-04-15T13:00:14.190+01:002013-04-15T13:00:14.190+01:00Please help - any advice on what to do will be gra...Please help - any advice on what to do will be gratefully accepted!<br /><br />I have plantar fibromatosis in my left foot. I am not kidding when I tell you it grew over a weekend! I used to love foot rubs (my significant other spoils me) but in one weekend, that all changed. <br /><br />I have a rather large bump in the arch of my foot that is growing and not slowing down. I went to a CT scan and the GP was able to diagnose it as PF. Now, in the opposite foot I seem to have gout. It is swollen/red but not on my big toe-but under my two toes closest to my big toe.<br /><br />So now, I have the following:<br />Plantar Fibromatosis left foot, gout right foot, bunion and taylor's bunion - right foot. I am struggling just to walk and I am in a great deal of pain. I am a 59 y.o. woman with fibromyalgia.<br /><br />Please, anything you can suggest would be of help! I cannot see a specialist until August of 2014! I just cannot imagine how I will handle a wait this long without some assistance.lucyhttps://www.blogger.com/profile/12962399956307799750noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-1614583114052556122013-02-12T15:15:20.527+00:002013-02-12T15:15:20.527+00:00Also meant to say that the posts will not show str...Also meant to say that the posts will not show straight away as there have been MANY spam posts and so I have to moderate each post, sorry for any confusion. GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-24641243684142841022013-02-12T11:47:59.274+00:002013-02-12T11:47:59.274+00:00Thanks for your post.
I have heard of this "...Thanks for your post. <br /><br />I have heard of this "cure" and see no reason why it should work. I actually found that rubbing vapor rub into mine made it worse, I also saw it and thought why not try. <br /><br />I am not really aware of anyone else trying it but you could have a look on the international Dupuytren's Society forum and there might be more on there. <br /><br />Please keep me updated on your progress should it work or if you change and go for another treatment. <br /><br />Hopefully it doesn't start to hurt. <br /><br />GaryGaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-67128230527821566092013-02-12T11:30:38.361+00:002013-02-12T11:30:38.361+00:00To finish my post, has anyone else heard of this ...To finish my post, has anyone else heard of this treatment? I would like to hear comments from others about this? For instance, is there any logical reason why this would work? I'm trying it, because it seems harmless, it is inexpensive, and I want to do something. <br /><br />Thanks in advance for the anticipated comments. Mathgirlhttps://www.blogger.com/profile/04064433856885913575noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-62497508275627531432013-02-12T02:23:45.027+00:002013-02-12T02:23:45.027+00:00I have a tiny lump on one foot that I first notice...I have a tiny lump on one foot that I first noticed last summer. There was no pain nor really any kind of sensation to it until about two months ago. Now I am aware of it. It is not painful, not even tender, but there is an awareness. I haven't seen anyone about it, I have just done a bunch of googling. I came across one "cure" that I found on a site..... It is similar to the one oz saffa wrote about on this blog on January 23. The guy claimed it took about 6 months, but his lump shrunk and went away.<br /><br /> Twice a day he rubbed vitamin E oil followed by Vicksburg vapor rub and then covered with a bandaid.<br /><br /> I'm two weeks into trying this. I don't have anything to report. The lump seems to have not changed in size, nor in the sensation that I feel. <br /><br />Mathgirlhttps://www.blogger.com/profile/04064433856885913575noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-83946821496384056582013-02-05T10:42:50.313+00:002013-02-05T10:42:50.313+00:00Hi.
Thank you for getting in touch, sorry to hear...Hi.<br /><br />Thank you for getting in touch, sorry to hear about your story and the all too common problem of people wanting to operate without telling you all of the options, it is as far as I am aware a known fact that surgery is not a good option, really not a good option. <br /><br />You have not said where you are based, (I checked your profile and it says UK) I would recommend looking in to Radiotherapy and seeing what you think about it, if you have any questions do not hesitate to e-mail me. For me radiotherapy has thus far been an amazing help and made the world of difference. <br /><br />I suffered from hip pain etc with my foot and I would not be surprised to find that a lot of people with this condition suffer from various different problems with hips, knees and backs etc as they try to compensate for this condition. <br /><br />Like you I tried physio, I tried insoles (which after radiotherapy are helping the stability of my foot and my gait therefore decreasing other problems), I tried steroid injections, I tried laying in bed doing nothing and looked into all the options and did a lot of research and although I had to pay (well funded by my family) I am in no doubt that radiotherapy was the right option for me but I have also been told that my response to it has been very good. <br /><br />I wish you lots of luck in finding some treatment for you and should you want to chat about it or anything then as I have said please e-mail me and I am happy to talk. <br /><br />All the best, <br /><br />Gary GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-61142827632894837622013-02-05T10:32:29.128+00:002013-02-05T10:32:29.128+00:00Hi Just happened across this site and read your bl...Hi Just happened across this site and read your blog with a mixture of dismay and relief in that you are the first person to describe my symptoms, but sadly offer no miracle cure.<br />My story is that my foot pain sort of got lost for a year or so due to the back pain and subsequent surgery which I suspect was a result of the original foot pain.<br />I think I first became aware of a lump in my foot after stepping down off a ladder. It felt as if I had stepped onto a stone almost as if it was bruised; only after a couple of days when I really looked at it, I noticed a lump the size of a marble in the arch of my foot. Cutting a long story short, about the same time I began experiencing severe back and sciatic pain and despite pain meds, lumbar injections, physio etc etc, I ended up having major surgery on my back. All the while, the lump on my arch kept growing. Some days it hurt more than others but caompared to my back, it was nothing. After the surgery, the back pain went but I was left with nerve damage to my foot. The same foot with the lump. By now the doctors had noticed the lump, thought it was suspicious and sent me off for an MRI. Before I knew it, I was being whisked in to have the 'tumor' removed. Hmmm! 18 months on and I now have not one but half a dozen lumps surrounding the scar. I have tried physio, insoles, rest, exercise and have reached the conclusion that nothing really helps. I can't say I am in extreme pain, but I have difficulty sleeping as I am constantly aware of my foot. The nerve damage has affected the flexibility in the foot as well as the initial condition.<br />I am convinced that there is / was a link between my back problem and my foot. I suspect that the way I compensated for the foot being uncomfortable somehow affected my gait and causing me to damage my disc. And now this week to my horror, I have discovered a lump on the arch of my other foot........!<br />I am beginning to wonder what the future will hold for me in terms of mobility. I have to say, I am not overweight, I exercise every day, walk, often wear sensible shoes nowadays( unfortunately). I would love to find out if my experience is totally unique and whether anyone else has had back/sciatic problems that they feel are connected.CBT Cookhttps://www.blogger.com/profile/09612073417831284876noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-38867418485401389052013-01-23T09:29:36.570+00:002013-01-23T09:29:36.570+00:00I started off with one in my left foot, small and ...I started off with one in my left foot, small and not sore... even with exercise... then another grew in my right arch... they both got bigger... still only real sore if prodded or stood on directly...<br /><br />They kept growing... due to what I presume stress on them having to work on my feet.<br /><br />5 yrs later I have 2 in the left and 3 in the right foot, the biggest being the size of a grape... <br /><br />What I have learned over the years...<br /><br />- it's either hereditary, caused by some trauma in the area, and can be linked to liver disease and alcohol abuse... or a combination of both...<br />- in many cases sufferers can develop Dupuytren contraction too and vice versa and in men a rarer link to Peyronies...<br />- surgery does not work it only comes back worse and quickly (for this reason I have not had surgery)<br />-many sufferers have a common denominator in that they have or still do work long hrs on their feet.<br />-Ventropil (sic) 15% gel does not work, not backed by governments and exceptionally expensive... however it can be replicated as compound clinics for cheaper.<br />- there has been some hype about a forum posters remedy he came up with... I have not tried it... and if one was to believe forums a few people have tried it with success... personally I find it hard to believe...<br /><br />Here it is all the same...<br /><br />He said he rubbed Vit E oil onto his lumps until it was absorbed, then deap heat and covered with a plaster... this he continued daily for ages (as well as rubbing his foot on a heat massager)... he swears after a few months they shrunk and then eventually disappeared...<br /><br />To sum up... the affliction is more common than many think... I have not found a remedy and too scared to tempt fate with surgery after reading scores of nightmare stories...<br /><br />I'm interested to see how radiotherapy goes for you... fortunately you only have a small one and it hasn't spread as it does for most...<br /><br />Keep up the good work... my post was more getting things off my chest rather offering any cure...Bloggers Blockhttps://www.blogger.com/profile/08856483070583401469noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-16164075205409589662013-01-21T07:16:39.167+00:002013-01-21T07:16:39.167+00:00Hi SJP,
They used an ultrasound to look at mine ...Hi SJP, <br /><br />They used an ultrasound to look at mine although that was in the process of the steroid injection and that hurt (the ultrasound is harmless though). The condition appears differently in different individuals and it maybe that for you it feels like vibrations, as you have suggested it is likely that this means it is hitting a nerve, if you have any questions then feel free to ask, e-mail is probably the easiest way. <br /><br />Thanks <br /><br />GaryGaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-52699861440609608702013-01-21T07:13:18.478+00:002013-01-21T07:13:18.478+00:00Hi Sandy,
I am sorry to hear about you condition...Hi Sandy, <br /><br />I am sorry to hear about you condition, let me know if you have any questions and I will do what I can to answer. The steroid injections do hurt a lot and do only tend to help for a short time, I hope you find a specialist and a treatment that works for you. Is it worth looking into radiotherapy? It worked well for me and I guess for you it avoids cutting you open so should mean there is not chance of the excessive scar tissue build up, anyway as I said feel free to ask questions. <br /><br />All the best, <br /><br />Gary<br /><br />(Remember you should always listen to medical professionals, I am not one but a lot of them know very little about this condition)GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-10521991204881300252013-01-20T23:01:27.564+00:002013-01-20T23:01:27.564+00:00HI,
I am having a soft tissue ultrasound this week...HI,<br />I am having a soft tissue ultrasound this week. I believe the lump I have is plantars fibroma but we will see. I noticed it last week when I felt an odd vibration in the bottom of my foot...on for about three seconds...off for about three seconds. I actually thought a bug was in my bed and crawling on my foot. I woke up to the same sensation and took a look at the bottom of my foot...a lump on my arch. I have suffered from plantars fasciitis in the same foot. But this vibration!!! I can't sleep. Is it blood gushing through the lump...is it a nerve being squished. Help!!!sjphttps://www.blogger.com/profile/14698513461922640569noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-90594471906594565152013-01-20T17:55:27.535+00:002013-01-20T17:55:27.535+00:00Hello I have this on both feet and wrist. Dr has n...Hello I have this on both feet and wrist. Dr has not been able to do anything but misdiagnosed and give exercises to do. I had a steroid injection on my left foot, this hurt so very bad, but only helped for about two months. It has returned with a vengeance, much bigger, more painful, hot and whole foot is inflamed. I have lumps (bible cysts) in both wrist. I have had two back surgeries failed due to excessive scar tissue built up (fibrosis) and walk in pain daily. I don't know what to say to my doctors to get them to listen, pt doesn't work, orthotics don't work, pain meds don't work... I am glad I came across this blog I really thought I was going nuts. I look forward to continued reading and learning. ..Sandyhttps://www.blogger.com/profile/14153165168011813372noreply@blogger.com