tag:blogger.com,1999:blog-660534336558900776.post3987173410381622908..comments2023-09-24T20:54:29.223+01:00Comments on Ledderhose Disease Blog: The struggles of a Ledderhose? PatientGaryManleyhttp://www.blogger.com/profile/03039676015910922554noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-660534336558900776.post-929059230265218962012-11-08T21:14:31.465+00:002012-11-08T21:14:31.465+00:00Why should we pay the entrance fee? Why not just s...Why should we pay the entrance fee? Why not just set up a route ourselves and do the run? What we would have paid in entrance fees can then be given as donations and we can do the run whenever and wherever we like so that it is convenient for everyone to join in. Would be great if we could find some why of getting donations from a wider audience. Perhaps those of us not wanting to do a run could do a spin off of the 3 legged race and have 11 legged race or something? <br /><br />Who knows, I am trying at the moment of thinking of ways of appealing to more people and being able to generate interest and get donations. All suggestions are welcome/ <br /><br />Yes it also makes me angry, I think the problem is that the specialists are just hand/feet specialists and the information that they are taught and given is down to certain groups and databases and it is these databases that we at the BDS are in the process of trying to get changed at the moment. A long process but one we are going to try to stick with. <br /><br />I feel honoured to be able to help all of these people, and the fact that these people are coming to me and giving such nice comments. Some of them, like this gentleman are starting to become my friends because we all need people in a similar situation to talk to. <br /><br />Anyone reading this that wants to get in touch please do.GaryManleyhttps://www.blogger.com/profile/03039676015910922554noreply@blogger.comtag:blogger.com,1999:blog-660534336558900776.post-25698225795340396902012-11-08T20:56:53.081+00:002012-11-08T20:56:53.081+00:00Each time I read stories like this it makes me sad...Each time I read stories like this it makes me sad and angry. Is it really for the public to educate the "specialists"? Why are the medical profession not being educated from within?<br />At the same time, I feel proud of you, that you are providing hope, advice and answers for sufferers! Can we consider doing another 5k (or 10 for mad people!) to raise money to support you in this? Maybe Windsor in April?Jo Nolan-Neylanhttps://www.blogger.com/profile/05730638021608750452noreply@blogger.com